The lack of thalassemia drugs threatens the lives of thousands of patients
In light of the current situation in the country for more than three years affected people with thalassemia and genetic blood, where most of the necessary drugs are missing, which in turn are a cause of continuity in their lives.
Thalassemia is also called anemia in the Mediterranean basin and is divided into thalassemia alpha and thalassemia beta. The thalassemia patient depends on blood transfusion every 21 days for life, which leads to the accumulation of iron in the body especially in the heart and liver, leading to failure of these organs and death unless the drugs are taken to the iron Thalassemia patients are on the rise as the Thalassemia Care Center is receiving increasing attention from patients, which worries the Center’s clients to provide secondary treatment to patients, not to mention the basic drugs tug of iron that was not in the previous period and other drugs that did not The Center provided to obey patients Maineks negatively on the health status of patients and cause serious setbacks and complications due to the accumulation of iron in the body.
Dr. Ahmed Shamsan Al-Muqrami, Chairman of the Yemeni Association of Thalassemia and Genetal Diseases, confirmed that the lack and shortage of medicines for Thalassemia patients from the drug market was one of the reasons for the high number of deaths of more than 130 deaths out of a total of 4,400 patients with thalassemia, Anemia “of sickle cell” registered with the association in the Secretariat of the capital, during the past three years, pointing out that the lack of “iron medicines” for patients, lead to accumulation of “iron” in the areas of “heart and liver,” which leads to complications for the patient end of death.
He explained that Thalassemia patients do not receive any local support, or humanitarian interventions carried out by international organizations, and the high cost of ensuring one of the patients of Thalassemia is very high up to 4 million riyals a year, which may be seen by some imaginary but the reality, which led to the reluctance of many Of businessmen and philanthropists not to ensure the patients, and limited to support some of the types of medicines they need for life, which require great financial resources and a very high budget, and this is a problem and suffering for patients with Thalassemia is not realized by very few .. The price of Alba Oxygene cat up to more than $ 400 and the price of $ 4 decibral ablution for the agency, according to the parent company Nuferts, which requires a device for injecting for a long period ranging from 5 – 10 hours per day and the estimated price of the device $ 500.
“Since the beginning of April, we have been issuing letters and appeals to the international health organizations to request the provision of medication and follow-up the Ministry of Finance to provide funds for the purchase of medicines and we are still communicating with them so far.” He noted that the annual budget for patients with thalassemia and sickle cell anemia in 2014 Dollars, which is insufficient with the high numbers of patients and the discovery of new cases within the program budget approved by the Ministry of Finance within the state budget, amounting to two billion three hundred and sixty six million and eight hundred and seventy thousand Yemeni riyals, Lyra that Thalassemia drugs his agents in Yemen, but very rarely sold in pharmacies.
The cost of purchasing four types of drugs given to patients for only three months is estimated at 321,000 US dollars.
The Center expresses its concern over the ongoing deterioration of patients’ cases and appeals to all local and international organizations and public bodies in the field of health, patient support and rapid rescue of the lives of thousands of patients.
This is the suffering of a thalassemia patient. He says: I have three patients with Thalassemia. I carry blood every 21 days. I have a continuous increase in the percentage of iron. The percentage of my children is more than twenty thousand and the natural rate is only three hundred. I am afraid of the deterioration of their health. In the Thalassemia Care Center and can not buy from abroad.
The number of patients registered with the center is increasing continuously due to the lack of commitment on the part of those coming to marry to undergo pre-marital medical examination, which causes the birth of new children infected with the disease, which negatively affects the family and society as a whole.
